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Showing posts with the label Courtney Lane

The Beginning of the End

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                                                              "Fly, fly, precious one; Your endless journey has begun; Take your gentle happiness; Far too beautiful for this; Cross over to the other shore; There is peace forevermore; But hold this memory bittersweet; Until we meet.   ~ "Fly" (Celine Dion) I told you I would start with the end first. And I've put it off long enough. But, as I think about this, I don't think the end can be fully understood until I tell the steps leading up to it. I'm hoping that writing about it all will release some of the horror of it for me. I doubt it. But I'll try anything at this point.  I thank you in advance for being willing to read this because there is no way you will be immune from taking on a piece of my pain as you hear the full s...

"You Want Answers? I Want the Truth! You Can't Handle the Truth!" (by Lisa Lane McCarty)

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"You make this look so easy" ~Auntie Janice I had dinner with my aunt a couple of months ago. She said to me, "I can't believe everything you are doing for Courtney. And you make it look so easy". I said, "Wow. I do? Because it's not easy. It's not easy at all."  She said, "I know it's not but you really make it look so easy". So life is a matter of perspective, right? What I am doing to save Courtney's life is easy...in comparison to what she is going through just to stay alive. But, I'm tired. Mentally, emotionally, physically. I'm anxious and terrified all the time about the near future as we finish up the pre-transplant testing and prepare for listing. I have nightmares almost every night. And they are not what you'd think. They are not nightmares about transplant or Courtney dying. But they are sometimes so intense that I have to will myself to wake up so my breathing can return to normal and my hear...

The Ghost of Christmas Yet to Come

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By: Lisa Lane McCarty “It is a fair, even-handed, noble adjustment of things, that while there is infection in disease and sorrow, there is nothing in the world so irresistibly contagious as laughter and good humour.”  ―  Charles Dickens,  A Christmas Carol Courtney and Carson at our family Christmas celebration (December 23, 2017)  My family loves the story  "A Christmas Carol" by Charles Dickens.   It was a tradition for us to watch the movie - the version with Alistair Sim because it's our favorite - around Christmas when I was growing up. Most of you know the story. And it's a good one. The ghosts of Christmas past, present and future visit Ebenezer Scrooge to help him find his humanity. The Ghost of Christmas Yet to Come was always the scariest, for many reasons. Physically, it was imposing and resembled the Grim Reaper. Mentally, it made you ponder the age old question of whether or not you would really want to know your future. The ...

Courtney Lane as a little girl that didn't want to leave our camp on the lake

By Tom Lane - now better known as Lisa Lane McCarty's father and Courtney Lane's grand-father My grand-daughter, Courtney , enjoyed herself at the camp I built on Aziscohos Lake in Western Maine . You can see she didn't want to leave - just as we do not want to see her leave us. She has a current support system, mostly in the form of my daughter, Lisa Lane McCarty - known to Courtney as Auntie Lisa - or Auntie Cisa (Lisa Lane as a little girl could not pronounce her "L"'s) . Courtney tells me she doesn't like Twitter, so to annoy her (seemingly my major purpose in life), I am posting this article, including the tweet. I do so to increase the number of people in her support system. And if she complains too much, I will not be preparing baked stuffed lobster for her for our pre-Christmas dinner. My grand-daughter, Courtney Lane's, first article as a cystic fibrosis patient and her battles with the disease and love/hate relationship with life. Wo...