Posts

Showing posts from February, 2019

The Rantings of a Heavy Hearted Lunatic

Image
"Because I can count on my fingers how many sunsets I have left and I don't want to miss any of them." So, maybe I don't know exactly how many sunsets I have left, but I know there will never be as many as I wish there could be and that sunsets for me are not even sunsets, but the moments I have left with the people I love.  Being end stage in a disease, while working towards a way to hopefully prolong your life (a double lung transplant) is an incredibly taxing affair. Physically, emotionally and mentally. You're forced to look at ALL possibilities. Of course, you always hope for the absolute best outcome. One of the things you deal with is people always telling you in one way or another to "think positive only." Well, wouldn't it be nice if life was that easy. Sorry to break it to the vast majority, but, I'm a realist. Now I know when people say these things, it's usually coming from a place of love and encouragment

"You Want Answers? I Want the Truth! You Can't Handle the Truth!" (by Lisa Lane McCarty)

Image
"You make this look so easy" ~Auntie Janice I had dinner with my aunt a couple of months ago. She said to me, "I can't believe everything you are doing for Courtney. And you make it look so easy". I said, "Wow. I do? Because it's not easy. It's not easy at all."  She said, "I know it's not but you really make it look so easy". So life is a matter of perspective, right? What I am doing to save Courtney's life is easy...in comparison to what she is going through just to stay alive. But, I'm tired. Mentally, emotionally, physically. I'm anxious and terrified all the time about the near future as we finish up the pre-transplant testing and prepare for listing. I have nightmares almost every night. And they are not what you'd think. They are not nightmares about transplant or Courtney dying. But they are sometimes so intense that I have to will myself to wake up so my breathing can return to normal and my hear