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Showing posts from November, 2018

Courtney Lane as a little girl that didn't want to leave our camp on the lake

By Tom Lane - now better known as Lisa Lane McCarty's father and Courtney Lane's grand-father My grand-daughter, Courtney , enjoyed herself at the camp I built on Aziscohos Lake in Western Maine . You can see she didn't want to leave - just as we do not want to see her leave us. She has a current support system, mostly in the form of my daughter, Lisa Lane McCarty - known to Courtney as Auntie Lisa - or Auntie Cisa (Lisa Lane as a little girl could not pronounce her "L"'s) . Courtney tells me she doesn't like Twitter, so to annoy her (seemingly my major purpose in life), I am posting this article, including the tweet. I do so to increase the number of people in her support system. And if she complains too much, I will not be preparing baked stuffed lobster for her for our pre-Christmas dinner. My grand-daughter, Courtney Lane's, first article as a cystic fibrosis patient and her battles with the disease and love/hate relationship with life. Wo

"The Princess and The Pauper"

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  The Life of a Cystic Fibrosis Patient (The Princess and The Pauper)       In this blog, you can expect to follow me through my life experiences, both past and present. Stories of the many people that have impacted my life. Family, doctors, friends, nurses, and other patients. Near death experiences, of which there were many. Updates. Articles. There is a story here.  There are many, in fact, all leading up to the biggest story of all, my life.  I hope it helps or educates at least one person and if it can't be for anyone else? I hope that the one person it helps, is me.   For the majority of my life, I hid my disease, from everyone I could. I never looked sick, so therefore, I never needed to tell anyone that I was dying. What importance would it have? What difference would it make, other than people treating me like a charity case? I didn't want that. To me, I was strong, I was capable and for all intents and purposes, I was normal and just wanted to lea