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The Rantings of a Heavy Hearted Lunatic

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"Because I can count on my fingers how many sunsets I have left and I don't want to miss any of them." So, maybe I don't know exactly how many sunsets I have left, but I know there will never be as many as I wish there could be and that sunsets for me are not even sunsets, but the moments I have left with the people I love.  Being end stage in a disease, while working towards a way to hopefully prolong your life (a double lung transplant) is an incredibly taxing affair. Physically, emotionally and mentally. You're forced to look at ALL possibilities. Of course, you always hope for the absolute best outcome. One of the things you deal with is people always telling you in one way or another to "think positive only." Well, wouldn't it be nice if life was that easy. Sorry to break it to the vast majority, but, I'm a realist. Now I know when people say these things, it's usually coming from a place of love and encouragment...

"The Princess and The Pauper"

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  The Life of a Cystic Fibrosis Patient (The Princess and The Pauper)       In this blog, you can expect to follow me through my life experiences, both past and present. Stories of the many people that have impacted my life. Family, doctors, friends, nurses, and other patients. Near death experiences, of which there were many. Updates. Articles. There is a story here.  There are many, in fact, all leading up to the biggest story of all, my life.  I hope it helps or educates at least one person and if it can't be for anyone else? I hope that the one person it helps, is me.   For the majority of my life, I hid my disease, from everyone I could. I never looked sick, so therefore, I never needed to tell anyone that I was dying. What importance would it have? What difference would it make, other than people treating me like a charity case? I didn't want that. To me, I was strong, I was c...