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By: Lisa Lane McCarty “It is a fair, even-handed, noble adjustment of things, that while there is infection in disease and sorrow, there is nothing in the world so irresistibly contagious as laughter and good humour.”  ―  Charles Dickens,  A Christmas Carol Courtney and Carson at our family Christmas celebration (December 23, 2017)  My family loves the story  "A Christmas Carol" by Charles Dickens.   It was a tradition for us to watch the movie - the version with Alistair Sim because it's our favorite - around Christmas when I was growing up. Most of you know the story. And it's a good one. The ghosts of Christmas past, present and future visit Ebenezer Scrooge to help him find his humanity. The Ghost of Christmas Yet to Come was always the scariest, for many reasons. Physically, it was imposing and resembled the Grim Reaper. Mentally, it made you ponder the age old question of whether or not you would really want to know your future. The ...

"Courtney is My Mission" Courtney has generously allowed me to guest blog here. So many people over the years have suggested that I write about my life with Courtney - so here you go! And, be careful what you ask for . HA! Courtney said this is hard because it leaves you vulnerable which I already feel as I start this. I want to share it all or this would be a useless endeavor. I truly believe that nothing is worth doing if you can't be honest and authentic. And I always try to be my true and authentic self so...deep breath... let's do this.                                          I hate the saying, "Everything happens for a reason" . It's trite. And I hate trite. But it's also a lie. Because there is no reason - none - that a baby should be born with cystic fibrosis. No. That doesn't "happen for a reason". It's genetic, it's out of their control. And the circum...

  "Say Goodbye."     When you are in the hospital, being treated for an exacerbation/infection, especially as a child. Your general expectation is that the medical professionals have your best interest at heart and the tools to be able to properly and effectively treat you. However, it is VERY important to understand your body, to advocate for yourself AND have someone else advocate for you. Because medical professionals are people, just like you and me and medicine is NOT an exact science. Wrong calls are made, judgements are passed, facts are overlooked and mistakes happen. For me, my trust in the people that were taking care of me, was almost fatal.   At fifteen years old, I was admitted into the hospital for a regular Cystic Fibrosis exacerbation/clean out. Where I am brought in, sedated with Propofol, given a PICC LINE,  and placed on heavy duty IV antibiotics along with the everyday medications and  CPT. A ty...